My Motto: One day at a time. When you know better you do better.
I have MS (multiple sclerosis) secondary progressive.
I live on my own in a unit and I have care 7 hours a day 7 days a week.
(7.00am-9.30am pc.) (12.30 pm 2.00pm lunch) (6.00pm-9.00pm)
Thanks to NDIS.
I’ve progressed a fair bit this year. I’m classed as a quad now. I can’t move from the waist down &my left hand is in a brace to stop the fingers curling up. I can only use right hand a little bit.
I’ve had this illness for about 22 years. I’ve picked up quite a few tips /ideas for managing this illness & any illness (stroke or anything.) I’d like to share some of these tips/ ideas with you.
- Move, Move, Move, Move – It’s my way of coping with what I have.
- The MOST IMPORTANT thing I can do for myself at this progressive time is exercise.
- I am lucky to be able to have my carers do my exercises 5 times a day 7 days a week.
- They work for me. (Check with your doctor before doing these things.) The exercises have been doing have been checked by a physiotherapist. I have altered them to suit me. I try to do them 5 times a day.
- I do 20 stretches on each limb. 1 lot in morning x 2 (i.e. 40) lunch & dinner.